I haven't posted anything online about Kinley since her appointment because we've all been coming to terms with her situation and it's been a little rough. So, it turns out that Kinley's torticollis (the neck problem) is more severe than we thought. We have to do daily stretches as many times as possible during the day and we also have to do strengthening excerises as many times as possible (this is where she turns her head to the right all on her own). We stretch out the muscles (in super crazy positions), but she has to build them all on her own. She is doing great, the muscles don't seem as tight, but she still has a long way to go on developing those muscles that were never worked. From my research online, this may take as long as her first birthday or longer. Usually, once they start "getting it" something happens, such as teething, and they relapse back to what they were comfortable with and we have to start again. As far as her head goes, it was also much more severe than we expected. The torticollis is causing her to always lay on the top left corner of her head, which causes the right top corner to bulge out. Her ears are also starting to get out of alignment and her cheeks and eyes. (This is when I really freaked out) So, we are keeping her completely off her back as much as possible. She has to sleep on her right side so that the other side will grow to match (hopefully) and we are trying to keep her out of swings, carseats, bouncy seats, and anything that comes in contact with the back of her head (as much as possible). We will be trying all of these repositioning measures for 2 months but if it doesn't work, she will have to get a helmet for several months to reshape her head. If she does need the helmet, we would most likely have to go to Dallas once a week until her head was re-aligned.....probably at least 3 months. Please pray for her and believe with us that the repositioning will help on it's own!
These are some pictures of Kinley doing some strengthening exercises to turn her head to the right and a CRAZY stretch with Daddy!
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